Sam Rose - My Sister And I Were Both Diagnosed With Friedreich's Ataxia Artwork

Chats From A Chair

I chat to people from my Wheelchair who have a great story to tell, portraying the human potential often in the face of adversity

All Episodes

Chats From A Chair

Sam Rose - My Sister And I Were Both Diagnosed With Friedreich's Ataxia

January 04, 2026 • Nick Dempsey

I speak with Sam Rose, as she opens up about her and her older sister both being diagnosed with a rare, inherited neurological disorder known as Friedreich's Ataxia. We discuss the events that led to the surprising diagnosis, how she feels watching her sister progressively get worse, the way that she expresses her sexuality online, her use of sex workers and how she makes the most of every day as she lives with "1 foot in the grave."